The first day of treatment I was ready to go. I had an idea of what to expect so I wasn't nervous going into this. Casey brought me to my infusion and stayed the whole day with me. We watched tv, played a good game of Battleship (to which I barely lost) and just hung out. I thought everything was going fine. However, a couple hours into the treatment, I took a nose dive. I began to have excruciating pain in my back, hips and legs. I then decided to take the pain medicine that my doctor prescribed me, but it only added by making me extremely nauseous. I was miserable!!! I have to admit that at one point I broke down and cried. I didn't know if it was the treatment that had caused all of it so I began to be fearful for the rest of the week. As I laid my head down in Casey's lap, I found comfort and began rejoicing. The Lord tells us to rejoice always. He doesn't say rejoice when everything is going the way you want it to. I still continued to hurt, but what a peace that came over me that the Lord is in control of it all!
I had been praying for a different reaction to the medicines and the Lord provided. It was a total night and day difference! I sailed through my infusions with no pain or nausea. The day felt like it flew by and before I knew it, I was done with my second day.
I start my day with an infusion of steroids, followed by 4 hours of Lemtrada. Since I didn't have any negative reactions on day 2, it was allowed that I cut down the infusion to only 2 hours. However, I wasn't really comfortable with that, so we ran it for 3 hours. Again, my day went perfect! Praise the Lord!!! How gracious He is to pour out his grace and mercy on His child!
But this I call to mind, and therefore I have hope: The steadfast love of the LORD never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness. "The LORD is my portion," says my soul, "therefore I will hope in him." - Lamentations 3:21-24
Have a blessed day!!!