The last two days of therapy ended up getting pretty rough. I did end up developing one of the most common side effects – hives. They started to develop on the last day when I was getting my infusion and cleared up the following day. I will admit that the next week was pretty miserable. Without getting into all the details, I just felt horrible. And, for me to admit that to other people, I was not in good shape. I think my body was just on overload, not only from the low-dose chemo I had just taken, but all the prescriptions that they put you on during your treatment. Through lots of prayers and rest, my body has moved on!
It’s now been 3 months since my Lemtrada treatment. How do I feel, you ask? Fantastic!!! I honestly feel like I have even more energy than before. After having such an aggressive therapy, I wasn’t sure what it would be like with all the possible side effects, but my body has tolerated it very well. Praise the Lord!
Before taking this treatment, you have to agree to get monthly blood work for the
next 6 years. (Yes, you read that right…6 years!) I have no idea what any of my
results really mean, but my doctor has told me the specific things he is looking at to track my health. To give you an idea of how my immune system was affected, let’s look at one thing called CD4, an essential part of the immune system. In May, (the month before I took Lemtrada), my CD4 level was 1055. The very next month it was at 45 and in July it was at 41! That’s a HUGE drop!!! So, basically, Lemtrada did its job and I have no immune system. I still have to be careful around sick people, but, again, I’m so thankful that I feel so great!
Tomorrow I go for my first brain MRI after this treatment and I’ll be excited to see those results. I feel like I will have good results again, so I’ll keep you posted!